My Journey April 16

I see the Rheumy on Tuesday and I'm again going to ask him to increase the pain meds. Or just give me something for break through pain.

The last time I asked him he just SMIRKED at me and said, "I don't believe in breakthrough pain meds." I have tried everything I know to get him to listen about the pain. He said, "Youre to young to be in pain like you say you are? DUH Did I ask for the pain, and is 66 to young to be in pain.

He called me a liar and demeaned my pain all in the same breath. But I know if her were in pain he would have plenty of pain meds. Probably be zonked out , but all I'm asking is a little help to take the edge off the pain.

I know I will never be pain free, but enough pain med could help me to function enought o get through my day, without haviny to lie down.

Have you ever gone a week or more without a shower because the pain is so bad? Not eaten for days because of the pain? Been unable to change you clothes and have to sleep in what you are wearing? Wear you shoes in bed because you can't move enough to take them off?

Well. We don't usually talk about this part of living with chronic intractible pain, but this is what happens. And we need to start talking about living like this. Doctors should listen to the patients and believe us when we try to express how the pain affects our daily lives.

These drugs were researched and manufactured to help relieve pain, and it's cimminal that we can't have access to enough to help us at all